I've had this from birth but have never thought to Google it until about an hour ago. WOW! I had no idea this condition was considered to be such a problem, let alone a disability, what on earth...?! I now realise how little I know about a condition I was born with, I'm ashamed. As a child I knew there was no treatment and nothing that could be done so I've always just got on with things, and really never given it a thought. Does anyone here suffer from this condition? Have you had it from childhood? How does it effect your life? Do you find anything helps improve your vision?