Aiming for this one as not been to one before, Pretty sure there is no competitions around that time that I will be attending.
Second donation has been made. My boss is coming along. Donate, get it done and in your diary. 8 months notice is more than enough.
Have I said I'll come along yet? Well I'll state it now. I'll make it barr serious outside calamities outside my control.
Is a work day so can't guarantee, but I'll do my best to make it to this one. Too good a line up and too many people it'd be great to finally meet to pass it up
Hypermobility is often lumped in with EDS, but EDS syndrome(s) whilst on the surface can similar, can also be drastically more severe. If your up north Sheffield have an excellent genetic service for suspected EDS.
We're down south, but she did have a two week appraisal/ physiotherapy programme at our local orthopoedic hospital, about three years ago when she was twelve. One of the main problems was very tight hamstrings, making straightening the back and standing for long periods painful, made worse by condition known as chronic pain syndrome( basically nerves misfiring and sending increased pain signals) One of the problems associated with chronic pain in children is that it can end up making physical activities/exercise painful and uncomfortable so avoidance makes the condition worse. Luckily my daughter's condition has greatly improved as she's grown up.
Thats really good to hear! I was recently in hospital at the same time as a poor teenage girl with vascular EDS, apparently she wasn't due to live more then a few more years because of her condition. It's a very misunderstood condition. This is a nice article as well about living with a less severe form of EDS. https://www.bbc.co.uk/news/uk-england-london-43595401
Okay peoples, Hannibal has asked if you have any requests for the MAP Meet. What would you like from him?
Not to kill people with dumb questions? Like - not kill people who ask dumb questions. Not running around asking dumb questions until one decides to break his own neck or something.
** tries really hard to refrain from saying something snarky! SYSTEMA! damnit! Seriously folks. Have an awesome time and break new records! Train hard! Train smart! Keep progressing!